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OK, so a little late coming, but we have to tell you about Sy’s latest trip to Cincinnati…

Well, to save a little time, let’s just say getting there was not half the fun. We had less than 13 hours to make a flight to Cinci, get an endoscopy done, recover, and get back to Orlando. Our trip was almost over before we started because our connecting flight in Charlotte was delayed over 2 hours (which would have caused us to miss our appointment). Fortunately, the people with US Airways listened to our situation and helped us get another flight that was a bit earlier. In order to make it work, I had to contact the Cincinnati Children’s Hospital EE Center and let them know that we would be running in and needing to get out quickly to make our flight home. They couldn’t make any promises, but they said they would do their best.

Well, the folks in Cinci were ready for us and here’s how it went:

2:00 p.m. Picked up from Cinci airport via hospital shuttle

2:15 p.m. Arrived at Cincinnati Children’s Hospital and went straight to registration

2:35 p.m. Sy is stripped down, assessed, and prepped for surgery

3:15 p.m. Sy is wheeled back to the OR, gassed, and the endoscopy begins

3:40 p.m. Procedure is complete, consultation with Dr. Franciosi is completed, Sy goes to recovery

3:55 p.m. Walked to recovery where Sy has already been dressed, is awake, and is being discharged

4:05 p.m. Shuttle is waiting outside and we are on our way back to airport to in plenty of time to make our flight home!

Now if that’s not incredible customer service (especially at a hospital), then I don’t know what is. All of the staff at Cincinnati Children’s were so fantastic that I can’t even express it. This is why we make the long trip there to get Sy’s EE treated. We feel like they are on our side and fighting for our success with this disease! Thank you, Cincinnati Children’s!

Here were the results of the procedure:

Dr. Franciosi explained that Sy’s elemental diet is working and that his esophagus had cleared up nearly 100%. All of this hard work, suffering, and 4-year-old’s sacrifice has not been in vain! We have now been cleared to start Sy on ONE solid food, introduce a few more over the next 3 months, and then return for a follow up endoscopy. Can you believe it?

So what’s the food that Sy will be starting on? You’ll have to stay tuned to find out!!! Thanks for reading!