I don’t even know where to begin…
Since my last post Sy has been admitted to the hospital, under anesthesia, has had a camera down his throat, biopsies taken, blood drawn, an IV, a tube inserted up his nose and down his throat that had to stay in for 20+ hours all while being hooked up to a computer, 75 scratches (for allergies) on both his arms, 3 huge patches with food chambers placed on his back that have to stay on for 3 days, the nose/throat tube removed (leaving a raw cheek & neck), and has been poked and probed more than you could imagine. He had a few silent tears here and there but through it all has tried to keep smiling. (See the pic on my facebook page. I don’t know how to attach it on here yet.)
All of that to say that I am more and more amazed at how God has created children to be so resilient and joyful in the midst of such trials. Even the nurses are shocked as to how well he handles pain and discomfort.
We have received definitive confirmation (once again) that he does have Eosinophilic Esophagitis and was also told today the sad facts that there is no cure and that he cannot grow out of this. We have never defined Sy by his disease and won’t start now. However, today was the reality that this will be a “thorn in his side” for the rest of his life. Tomorrow I will have an in-depth education class to learn more about it. Cincinnati Children’s is the best of the best in research for EE and I am so thankful to be here. But even more than that, I’m thankful to know that God intricately created Sy Sy just as he is and that nothing is out of His control, care or healing.
