Well, after another trip to the Cincinnati Children’s Hospital last week, we are at another standstill.
When getting the update immediately after the surgery, we were encouraged to hear that Sy’s esophagus was looking much better. It should look this way because the kid has been without food for the last several months so there should be no irritants. The other side of that conversation, however, was a bit more disheartening. Because we have tried many different methods to get to the root of the issue (and failed), his doctor said we are running out of treatment options. That’s really hard to hear when you feel no closer to a solution.
We also received news this week about the results of the biopsies that were taken during the surgery. We were expecting good results to follow the good visual reports from before, but we were wrong. According to the eosinophil count, the disease is still active in his esophagus! Even with this poor boy eating no food at all, we still can’t keep him in the clear. We have to find a way for Sy to eat and be healthy…
So in all of this, we know that God must be up to something bigger and greater! We are praying and asking that new doors for treatment would open. We need wisdom and discernment concerning this and we’re hopeful that the best direction we need to head in will be obvious. We are currently at a dead end, but we know that is when God does his best work. Sy, of course, is still smiling and trusting us that he is on the right path. Somedays it hard when you’re not even sure you are on a path at all. His latest question is, “Mommy and Poppy, are you praying for God to heal me every night?” His faith is unshakeable and he believes without a doubt that he will be eating like the rest of us one day soon. His faith has strengthened our faith for sure.
This is not meant to be a downer post. We just want to keep y’all up to date. Thanks for any prayers you can offer for Sy Sy. We’ll try to be better about posting!
